- The Review has been prompted by the sunsetting of the National Health Privacy Rules 2018, which apply to the processing and storage of Medicare Benefits Schedule (MBS) and Pharmaceutical Benefits Schedule (PBS) claims information by Services Australia and the Department of Health. It will determine whether and how the Rules should be updated.
- NSWCCL considers that the Rules adequately protect the privacy of individuals and should not be amended. The Consultation Paper that accompanies the Review makes it clear that there is an emerging public policy approach “favouring data use and reuse in research, evidence-based decision making and the provision of government services generally.” NSWCCL does not accept that a technocratic approach to more convenient or efficient service-delivery and research policy warrants eroding the privacy safeguards in the Rules.
- Within the last 5 years public perceptions of how data should be used and shared have changed. The expectations of a majority of Australians are in favour of more privacy protections over their information, not less. The latest Government survey of Australians’ privacy concerns shows 84% of Australians consider it to be a misuse of their information when supplied to an organisation for a specific purpose and then used for another purpose.
- Public policy is served, under the Rules, by recognising that the information provided to the Department of Health and Services Australia is for the purpose of dealing with MBS and PBS claims and for no other secondary purpose. If there is any sensitive personal information provided to government that should not be used for secondary purposes, then, surely, this is that information.
More information: read our full submission
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